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Invisible Consequences: How Federal Policy Shapes Economic Security for Older Adults

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Invisible Consequences: How Federal Policy Shapes Economic Security for Older Adults

The webinar explores how legislative changes—especially the Older Americans Act, the Big Beautiful Bill and Social Security adjustments—affect older adults even when they are not the intended policy targets. It also discusses how eligibility rules, documentation requirements and reporting burdens create barriers to benefits such as Medicaid, SNAP, housing and caregiver assistance. Our experts additionally examine how policy shifts influence housing stability, consumer debt (including mortgages and student loans) and caregiving supports, all of which shape real-world access to basic security. Presenters included Benjamin Rose CEO Orion Bell, independent elder justice consultant Judith Kozlowski, and Bob Blancato, the national coordinator of the Elder Justice Coalition and president of Matz, Blancato and Associates.

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Connecting the Dots: How Community-Based Organizations Strengthen Comprehensive Dementia Care

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Connecting the Dots: How Community-Based Organizations Strengthen Comprehensive Dementia Care

This informative and timely presentation provides insights into the roles and functions of community-based organizations, including Area Agencies on Aging and multi-service organizations, as well as providers of Adult Day, transportation, respite and home health.

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What is Care Navigation and How is it Changing the Landscape of Care for Older Adults?

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What is Care Navigation and How is it Changing the Landscape of Care for Older Adults?

Everywhere you turn these days it seems there’s more talk about Community Care Navigation, and how health systems are working with community-based organizations to extend their reach outside of their facilities. It’s about time! Care Navigation programs have been around for 20-plus years and proven time and again to decrease healthcare costs through reductions in ER visits, hospital readmissions and physician visits. Plus, they improve patient care!

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Publication

Cannon, R. M., Bass, D. M., Powers, S. M., Minyo, M. J., Fete, Z. F., & Huth, M. K. (2025). Healthcare and Community Organizations Implementing Evidence-Based Dementia Caregiving Programs: Findings from Best Programs for Caregiving. The Gerontologist, 65, gnaf059. https://doi.org/10.1093/geront/gnaf059

Background and objectives: A major success in implementation science is the delivery of evidence-based dementia support programs for family/friend caregivers by service organizations. Best Programs for Caregiving (BPC) launched in 2020 as an online resource profiling 42 evidence-based programs being delivered as regular services. Data collected in 2018-2019 describes the number, characteristics, and experiences of organizations delivering BPC programs. Research and design methods: Data came from structured surveys of program developers and organizations delivering BPC programs. Descriptive analyses profile programs and organizations. Results: In 2018-2019, 350 organizations were reported as implementing 37 BPC programs, serving an estimated 40,000 caregivers and persons living with dementia. Most delivery organizations were healthcare systems (n = 77, 23.8%), Area Agencies on Aging (AAAs; n = 77, 23.8%), or Alzheimer’s/Dementia Associations (n = 39, 12.0%). Eighteen funding sources were used to cover program delivery costs, which most commonly were the Older Americans Act Title III-E (n = 60, 34.3%) and non-ACL grants (n = 49, 28.0%). The most common challenges with delivering programs were marketing (n = 124, 69.8%) and engaging caregivers (n = 118, 66.3%), despite high satisfaction with program training and support. Discussion and implications: More organizations than previously known were delivering evidence-based BPC programs. Delivery experiences varied widely, with top challenges highlighting the need to increase knowledge of the availability of dementia caregiving support programs. Findings offer benchmarks for assessing the future availability and reach of evidence-based dementia caregiving programs to meet the needs of the increasing number of families caring for individuals living with dementia. Keywords: Caregiver support; Dementia caregiving; Program implementation.

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Publication

Minyo, M. J., Powers, S. M.,Bass, D. M., Cannon, R. M., Maslow, K., Fete, Z. F., & Huth, M. K. (2025). Programmatic research outcomes used to establish the evidence-based of dementia caregiving support programs: An analysis of Best Programs for Caregiving. Alzheimer’s & Dementia: Translational Research & Clinical Interventions,11, e70092. https://doi.org/10.1002/trc2.70092

INTRODUCTION A substantial number of evidence-based dementia caregiving support programs positively impact family and friend caregivers. Researchers and service organizations have successfully translated and delivered a subset of these programs to caregivers and are included in Best Programs for Caregiving (BPC). This investigation examined the programmatic caregiver research outcomes reported in peer-reviewed articles of BPC programs to understand how programs impact caregivers in the community and identify underrepresented outcomes. METHODS Peer-reviewed, published research articles that (1) reported at least one dementia caregiver outcome, and (2) used a controlled trial or pre/posttest study design were abstracted from the BPC database. Across 45 evidence-based programs in BPC, 128 articles met inclusion criteria for data coding and descriptive analysis. Research outcomes (e.g., stress, depressive symptoms), efficacy findings (e.g., beneficial, no effect), and the type of study design used (e.g., pre/posttest, treatment/control) were coded from each article. RESULTS Twelve programmatic outcomes were identified focusing on Caregiver Well-Being and Caregiver Support. Caregiver Well-Being outcomes were frequently assessed by BPC programs, including symptoms of depression, reported in 81 (63.3%) articles, and care-related stress, strain, and/or burden, reported in 75 (58.6%) articles. By comparison, Caregiver Support outcomes were infrequently measured including quantity of family/friend support, reported in 17 (13.3%) articles, and quantity of community service use, reported in 13 (10.2%) articles. High percentages of beneficial findings were reported for both Caregiver Well-Being and Caregiver Support outcomes. Articles reported beneficial findings using pre/posttest and treatment/control group designs similarly across caregiver outcomes. DISCUSSION The majority of BPC programs positively impact caregiver well-being outcomes but limited attention is given to other person-centered and strength-based research outcomes including supports for caregivers, unmet needs, and positive aspects of caregiving. Additional research is needed by both established and new non-pharmacological caregiving interventions to target and evaluate the impact of these underrepresented outcomes. Highlights Best Programs for Caregiving is an online database of dementia caregiving programs. BPC programs mainly target deficit-focused, medical-based, well-being outcomes. Few BPC programs target positive aspects of caregiving and service use outcomes. More research is needed to evaluate underrepresented caregiver outcomes.

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Care-Based Estate Planning for Families Living with Dementia

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Care-Based Estate Planning for Families Living with Dementia

Estate planning is necessary and provides peace of mind, but wills, trusts and powers of attorney can all seem terribly complicated and intimidating to many families. This valuable webinar provides professionals and family caregivers with practical guidance on estate planning, Medicaid rules, and long-term care funding strategies tailored to families living with dementia.

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Everything You Need to Know About the CMS GUIDE Model and How AAAs Can Get Involved

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Everything You Need to Know About the CMS GUIDE Model and How AAAs Can Get Involved

Join us for an information-filled virtual presentation specifically about features, benefits and details of the national GUIDE rollout. This presentation, followed by Q&A, includes an overview of CMS’ goals in developing GUIDE, a review of the 9 required elements of GUIDE delivery, as well as the unique role that providers of older-adult services and healthcare organizations can play in the process.

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19th Annual Katz Policy Lecture: Advancing Dementia Caregiving

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19th Annual Katz Policy Lecture: Advancing Dementia Caregiving

The 19th annual Katz Policy Lecture examines groundbreaking research and innovations in dementia care. Dr. David Reuben, Archstone Professor at UCLA and leading expert on aging and dementia care, discusses comprehensive dementia care, provides updates on the Guiding an Improved Dementia Experience (GUIDE) payment model, and presents findings from the Dementia-Care Study (D-CARE), Lastly, Dr. Reuben highlights future directions in dementia care policy and research.

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Understanding FTD: Diagnosis, Support and Resources for Patients and Caregivers

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Understanding FTD: Diagnosis, Support and Resources for Patients and Caregivers

In this webinar, you’ll learn about the signs and symptoms of FTD, how it’s diagnosed, and the specific needs of both those living with FTD and their caregivers. We also highlight helpful resources and support services for GUIDE and non-GUIDE providers, offering valuable insight to better support patients and their families on their individual journeys.

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